Floppy : Tales of a Genetic Freak of Nature at the End of the World
(2023)

Nonfiction

eBook

Provider: hoopla

Details

PUBLISHED
[United States] : Red Hen Press, 2023
Made available through hoopla
DESCRIPTION

1 online resource

ISBN/ISSN
9781636280981 MWT15914092, 1636280986 15914092
LANGUAGE
English
NOTES

When ten-year-old Alyssa is diagnosed with the rare genetic connective tissue disorder Ehlers-Danlos syndrome, she vows not to let it stop her. Unfortunately, her efforts to avoid being "too sensitive" lead her to neglect not only her health but other aspects of her life as well. Twenty years later, she's finally forced to confront the reality of her condition head on. When she finds herself tangled in an unwieldy combination of chronic pain, a library job for which she is particularly ill-suited, and her wife's mystifying health problems, her body starts to unravel in ways she can no longer ignore. If pushing through is not the answer, what does homecoming to her floppy body even look like?

Mode of access: World Wide Web

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